CONTACT: malan@malanweb.org

LEUKEMIA AT A GLANCE

• The disease starts with a genetic change in a single white blood cell in the bone marrow.

• The cell turns malignant and reproduces itself, overwhelming healthy cells, attacking the body's blood-producing organs and causing anemia, infection and internal hemorrhaging.

• Early warning signals can include a swelling of the spleen, general tiredness, bruising easily and shortage of breath.

• Without immediate medical help, leukemia can kill within weeks.

• Initially, it is treated with anti-cancer drugs, principally chemotherapy.

• In most cases, a transplant is the only long-term cure.

• The "all-clear" does not usually come within five years.

More Useful Knowledge

Marrow Typing and Matching (骨髓或干细胞移植和配型测试):
 

名词解释

何为造血干细胞移植

根据造血干细胞来源的不同，白血病患者的移植主要有脐血移植、骨髓移植和外周血造血干细胞移植，他们被统称为造血干细胞移植。

脐血移植

脐血移植是指利用新生婴儿脐带在被结扎后存留在脐带和胎盘中的血液----—脐带血来进行的移植。虽然每个婴儿脐带中只有少量的血，但这些血液中含有大量的干细胞，是成体干细胞的主要来源之一。

骨髓移植

骨髓移植是指通过骨穿刺的方法直接从经过局部麻醉的供者的髋骨中抽取“骨髓血”来进行的移植。这种骨髓血，包含有血浆、造血干细胞和血液中的各种有形成分，这种移植方式曾被广泛采用，目前主要使用在亲属间的造血干细胞移植上。

外周血造血干细胞移植

外周血造血干细胞移植是指通过血细胞单采技术从供者体内获取外周血造血干细胞来进行的移植。正常情况下，人体外周血中是没有造血干细胞的，要通过提前注射造血细胞生长因子来促使骨髓中的干细胞释放到外周血中，然后再通过细胞单采技术采集释放到外周血中的造血干细胞。中华骨髓库目前主要采用这种方式来为自愿者采集造血干细胞。

每个白血病患者因为所患白血病类型不同、程度不同，采用何种方式的移植要根据移植医生的治疗建议和配型情况具体来定。但不管采用什么类型的移植，切记要抓紧时间，选对方法一定不要错过最佳移植的时机，耽误治疗。

If you want to learn more about HLA typing, read this:
http://www.marrow.org/PATIENT/Donor_Select_Tx_Process/The_Search_Process/HLA
_Matching_Finding_the_Best_/index.html

The following is a general procedure for doctors to find potential BM
matches for patients:
http://www.marrow.org/PATIENT/Donor_Select_Tx_Process/The_Search_Process/ind
ex.html

If you do not want to go through the National Registration procedure, you can choose the testing kit using buccal swab, which does not need any blood. For more information, please go to http://bonemarrowtest.com
 

Various bone marrow banks (各地骨髓库):

http://www.aadp.org/become_a_donor.html (US Asian)
http://www.bloodservices.ca (Canada)
http://www5.ha.org.hk/rcbts/e_main.html (HongKong)
http://www.jmdp.or.jp/ (Japan)
http://www.nmdp.org (US general) 

http://www.isun.org   (Beida Sun Shine 北大阳光)

China Marrow Donor Program (CMDP 中华骨髓库)
Match codes: No matchcode
Hematopoietic Stem Cell Donor Program Administration Center of Red Cross
Society of China
No. 53 Ganmian Hutong
Dongcheng District
100010 Beijing
China TEL: +86-10-6512-6152
FAX: +86-10-6559-4434
Details
Email: Hongjunling@sina.com
Website: None

Korea Marrow Donor Program
Match codes: No matchcode
Seoul Red Cross Hospital
2-2 Gyonam-dong, Jongno-Gu
110-100 Seoul
Korea, Republic of TEL: +82-2-737-5533
FAX: +82-2-737-5337
Details
Email: kmdpb@kmdp.or.kr
Website: None

Singapore Bone Marrow Donor Programme (BMDP)
Match codes: No matchcode
Health Sciences Authority
11 Outram Road
169078 Singapore
Singapore TEL: +65-6327-1344
FAX: +65-6327-1279
Details
Email: admin@bmdp.org
Website: None

http://www.bmdw.org/index.php?id=addresses (world wide)

European (EMDIS) and German Marrow Donor Information System (GERMIS)

More Links (其它相关网站):

白血病有可能治愈

http://www.pathfinder.com/asiaweek/98/0313/feat2.html

http://www.yujian.org/

http://www.chinabxb.com/
http://www.baixuebing.org/
http://www.baixuebing.org/xyb/HTML/xyb_190.htm
http://www.baixuebing.com/

CONTACT :  malan@malanweb.org